bloody tests!

im the worst blogger in the history of blogdom.

here i start a blog for all those moms and dads whose children have been diagnosed with similar things to mine so that maybe one of them can come across it and actually see good news.  ive found that most blogs started due to a childs health issue seem to just fade off once the child has gotten better, been given a good diagnosis, or any other multitude of reasons.

so much has happened since i last wrote.

we went on an awesome vacation!  two weeks in florida before the dreaded MRI for the baby.  honestly, i wasnt even worried about the MRI itself, i was more concerned with the whole anesthesia thing...  but all went well.  he cried a bit when they put the face mask on him, but out he went, and he was awake before they even got him into the recovery room.  and by that afternoon, he was walking around and playing like nothing out of the norm had even happened. 

next we went back to the neurologist to go over everything, fantastic results!  his brain looks totally normal, so my happy happy baby is one of the few with microcephaly that has no brain damage.  woohoo!  but his head is still small so the doc wants to continue monitoring him, and wanted us to go ahead and keep the appt we made with the pediatric geneticists. 

finally the day comes for appt with genetics!  i truly had no idea what to expect, but  i think it went really well.  apparently we saw the expert dr in NF-1, Dr. Rosenbaum at Children's, which was awesome because just from a physical examination he ruled it out completely.  the babys giant birthmark is just a giant birthmark.  so much good news!  we were given an order to get some more blood work done, more specifically an array which i guess is an easier and cheaper way to see if there are any genetic abnormalities.  and also a test to see how his muscles are performing.  im assuming that goes along with his hypotonia issue.  hopefully well be finding out the results from the bloodwork any day now... 

so currently its just a waiting game.  i promise to update as soon as anything new comes up!