my sweet baby boy was diagnosed with microcephaly, hypotonia, and now duchenne muscular dystrophy. after searching for some support, i realized there werent many happy stories out there, so here i am to tell you the story of my happy happy baby.

Monday, July 29, 2013

vicious cycling.

ok the last post should've posted some time last week... 

update:  we have an appt at the MD clinic on Thursday!  da da da daaaaa!!!!  so check back Friday-ish to find out how that went...  I really have no idea what to expect.  but they did keep trying to make his appt like it was a follow up, I had to say quite a few times that it wasn't really a follow up because we have never seen any of the drs other than the nurse practitioner.  I think the dude was confused because we have been there twice but haven't seen any of the specialists...  so well see how it goes!

we have some other sad stuff going on at the moment...  but ill write about that later.  nothing to do with the kids though, so dont worry!  but dont you hate when youre in a down mood and all you want to do is listen to melancholy music which only further deepens your sadness?  ugh...  vicious cycles and their vicious cycling ways...

the word melancholy reminds of the movie 'melancholia'  super weird...  just fyi...

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