my sweet baby boy was diagnosed with microcephaly, hypotonia, and now duchenne muscular dystrophy. after searching for some support, i realized there werent many happy stories out there, so here i am to tell you the story of my happy happy baby.

Tuesday, April 2, 2013

eb.

the happy baby had a pretty good weekend. 

we had a glow in the dark easter egg hunt the night before easter at meme and pop pops so, of course that was awesome.  then when we got home, the big boy thought he spotted the easter bunny in some bushes so obviously we had to do some investigating and exploring around the neighborhood, we heard him a couple times and thought we had him cornered, but he got away... 

but before the glow in the dark hunt, we dyed eggs with the meme and pop pop and finny had a first!  we finally heard an unsolicited 'i love you,' from him.  so cute!  but, he said it to his cars which took a little of the sweetness out of it... ha ha! 

oh, and remember when i said we had an entire month free of drs visits?  i totally lied.  we were supposed to have had an appt with finnys neurologist yesterday.  but in my defense, i thought we cancelled that thing when finny had to go in for his eeg.  apparently we did not.  so after some back and forth between myself, the receptionist and the the dr, we decided that we dont need to go back in for a follow up because everyone is in agreement that the neurologist at the mda clinic will be able to follow finnys progress...  so well see how that goes. 

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