my sweet baby boy was diagnosed with microcephaly, hypotonia, and now duchenne muscular dystrophy. after searching for some support, i realized there werent many happy stories out there, so here i am to tell you the story of my happy happy baby.

Thursday, March 28, 2013

smarty pants.

it finally happened!

we actually had an appointment with a specialist and came back with a totally normal diagnosis!  woohoo!  ha ha!

we had our visit with the pediatric developmentalist yesterday at childrens...  i made the appt awhile ago, before the big diagnosis was made.  i thought i was gonna be able to cancel it because i was thinking that now we know that he has muscular dystrophy, it kinda explains his few delays, but the mda clinic wanted us to keep the appt and just see how it went.

it went fantastically.  it was a team if three drs, one with me and two hanging out observing finny being totally cray.  long story short, they said that hes really smart for his age which is absolutely amazing when two of his 'issues' can sometimes cause intellectual disabilities...  and they said he had a great temprament and seemed like a completely normal toddler.  if they didnt know all of his history, they wouldnt have ever thought that he had any problems.

so finny got to play and chat with some fun drs, made a great impression and we were told that we dont have to see them again!  woohoo!  we have an entire month free of doctors visits!  as im typing this im realizing that i am likely jinxing myself, and my children will most definitely get a flu of some sort next month, forcing us to go to the doctor during our 'free month.' 

 
sweet happy baby playing at childrens.

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