my sweet baby boy was diagnosed with microcephaly, hypotonia, and now duchenne muscular dystrophy. after searching for some support, i realized there werent many happy stories out there, so here i am to tell you the story of my happy happy baby.

Thursday, September 6, 2012

tests, tests, tests.

AT LAST!  we got an appt at the hospital for finnys big MRI...  after two days of back and forth calling of the neurologist, our insurance, and the pediatric radiology patient coordinator, he goes in on the 26th.  im relieved to finally have all the appointments made, but of course a little anxious about the baby having to go through all of this.  and while i understand the reasoning, i really hate that he has to be put out for the MRI, it just makes me nervous. 

and once the MRI is done, i think it will give us a ton of answers, and totally confirm my belief that my baby boy is that 15 % that is/and will be intellectually normal.  if all we have to deal with is his slight physical delay, then i will be the happiest mama ever!  we'll just keep going to physical therapy and get him back on track. 

speaking of physical therapy... our last appt was two weeks ago because his therapist (who is fantastic, btw) went on vacay. anyway, baby boy took his first steps! it was super awesome, and totally emotional. easily in my top 5 best days ever. he took about 8 steps unassisted in a row, i recorded him taking a few at a time, and he hasnt taken that many since but thats ok, he did it once, he'll do it again.

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