my sweet baby boy was diagnosed with microcephaly, hypotonia, and now duchenne muscular dystrophy. after searching for some support, i realized there werent many happy stories out there, so here i am to tell you the story of my happy happy baby.

Monday, September 10, 2012

your epidermis is showing.

we go to see a pediatric dermatologist this morning for finnys giant birthmark...  im not thinking anything definitive will happen, especially when they ask about his history and i inform them of all the 173 tests we're currently undergoing for everything in this poor little munkins life. 

they will probably just send whatever their findings are to the neuro, and then tell us to keep them informed of everything on the neuro and genetic specialist side of things...

fun fun.

ill update later if theres anything interesting...

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