we finally got an aswer to all the craziness that has been going on in my poor happy babys life for the past year... i cant believe this has all been going on for a year, sometimes it feels like so much longer (even though hes not even 2) and sometimes it feels like its been just a couple months.
wednesday night our geneticist called and said he had finally gotten in all the results of finnys bloodwork. two different tests confirmed that he has muscular dystrophy. we're not really sure what type he has yet, so theres a lot of anxiousness in the krade house until tuesday when we have an appointment with the neuromuscular center at childrens in dc. im really hoping we get an idea of what were dealing with then, because the internet can be a scary place. and not being absolutely positive that i knew exactly what md was, i definitely did some researching that led to a lot of crying and headaches. terrible idea.
but due to some awesome words of encouragement from a fantastic group of ladies in a mom group im part of, i changed my attitude some and decided that we are gonna tackle this thing head on. my kid is awesome, and hes going to continue to be awesome.
my family is going to participate in a walk to raise funds and awareness of muscular dystrophy. if youd like to join our team, or donate any amount, please check out fins to the left, our team for finny!
im sure ill have a lot more to say on all of this later, but right now im trying to keep my positive mood going on, so im not gonna get all deep into my thoughts... but dont be surprised if theres a random midnight post of depression..
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